Alone we are rare, together we are strong

As many rare diseases are severe forms of more common diseases, studies on rare diseases are crucial for identifying cellular and molecular pathways that are associated with the development of other more common diseases, potentially impacting millions more people.
Henriette Lamprecht
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Orphan

In some parts of the world, the term orphan disease describes a rare disease whose rarity results in little or no funding or research for treatments, without financial incentives from governments or other agencies.

Facebook: Namibian Alliance for Rare Diseases, 081 142 3543, rarediseasesnamibia.com

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Namibian Sun 2024-09-21

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LaLiga: Deportivo Alaves 2 vs 1 Sevilla | Leganés 0 vs 2 Athletic Club | Real Betis 2 vs 1 Getafe SerieA: Hellas Verona 2 vs 3 Torino | Cagliari 0 vs 2 Empoli European Championships Qualifying: Stoke City 1 vs 3 Hull City English Championship: Stoke City 1 vs 3 Hull City Katima Mulilo: 20° | 36° Rundu: 22° | 37° Eenhana: 18° | 38° Oshakati: 18° | 37° Ruacana: 18° | 36° Tsumeb: 22° | 35° Otjiwarongo: 15° | 33° Omaruru: 15° | 35° Windhoek: 15° | 31° Gobabis: 12° | 32° Henties Bay: 11° | 21° Wind speed: 18km/h, Wind direction: NW, Low tide: 07:11, High tide: 13:35, Low Tide: 19:41, High tide: 01:54 Swakopmund: 13° | 15° Wind speed: 21km/h, Wind direction: N, Low tide: 07:09, High tide: 13:33, Low Tide: 19:39, High tide: 01:52 Walvis Bay: 11° | 20° Wind speed: 21km/h, Wind direction: N, Low tide: 07:09, High tide: 13:32, Low Tide: 19:39, High tide: 01:51 Rehoboth: 11° | 32° Mariental: 12° | 34° Keetmanshoop: 11° | 31° Aranos: 11° | 33° Lüderitz: 13° | 21° Ariamsvlei: 10° | 30° Oranjemund: 14° | 30° Luanda: 22° | 24° Gaborone: 12° | 25° Lubumbashi: 19° | 35° Mbabane: 8° | 12° Maseru: 4° | 17° Antananarivo: 11° | 32° Lilongwe: 19° | 30° Maputo: 14° | 22° Windhoek: 15° | 31° Cape Town: 11° | 24° Durban: 13° | 18° Johannesburg: 6° | 19° Dar es Salaam: 23° | 30° Lusaka: 19° | 29° Harare: 13° | 28° Currency: GBP to NAD 23.26 | EUR to NAD 19.53 | CNY to NAD 2.48 | USD to NAD 17.5 | DZD to NAD 0.13 | AOA to NAD 0.02 | BWP to NAD 1.28 | EGP to NAD 0.35 | KES to NAD 0.14 | NGN to NAD 0.01 | ZMW to NAD 0.65 | ZWL to NAD 0.04 | BRL to NAD 3.16 | RUB to NAD 0.19 | INR to NAD 0.21 | USD to DZD 131.91 | USD to AOA 927.77 | USD to BWP 13.17 | USD to EGP 48.46 | USD to KES 128.48 | USD to NGN 1593.37 | USD to ZAR 17.41 | USD to ZMW 26.45 | USD to ZWL 321 | Stock Exchange: JSE All Share Index Same 0 | Namibian Stock Exchange (NSX) Overall Index 1831.97 Down -0.38% | Casablanca Stock Exchange (CSE) MASI 14246.86 Up +0.44% | Egyptian Exchange (EGX) 30 Index 30937.69 Up +1.96% | Botswana Stock Exchange (BSE) DCI 9651.25 Same 0 | NSX: MTC 7.75 SAME | Anirep 8.99 SAME | Capricorn Investment group 17.34 SAME | FirstRand Namibia Ltd 49 DOWN 0.50% | Letshego Holdings (Namibia) Ltd 4.1 UP 2.50% | Namibia Asset Management Ltd 0.7 SAME | Namibia Breweries Ltd 31.49 UP 0.03% | Nictus Holdings - Nam 2.22 SAME | Oryx Properties Ltd 12.1 UP 1.70% | Paratus Namibia Holdings 11.99 SAME | SBN Holdings 8.45 SAME | Trustco Group Holdings Ltd 0.48 SAME | B2Gold Corporation 47.34 DOWN 1.50% | Local Index closed 677.62 UP 0.12% | Overall Index closed 1534.6 DOWN 0.05% | Osino Resources Corp 19.47 DOWN 2.41% | Commodities: Gold US$ 2 622.23/OZ UP +1.35% | Copper US$ 4.31/lb DOWN -0.0032 | Zinc US$ 2 884.80/T DOWN -0.23% | Brent Crude Oil US$ 74.74/BBP DOWN -0.0019 | Platinum US$ 976.09/OZ DOWN -0.0067 Sport results: LaLiga: Deportivo Alaves 2 vs 1 Sevilla | Leganés 0 vs 2 Athletic Club | Real Betis 2 vs 1 Getafe SerieA: Hellas Verona 2 vs 3 Torino | Cagliari 0 vs 2 Empoli European Championships Qualifying: Stoke City 1 vs 3 Hull City English Championship: Stoke City 1 vs 3 Hull City Weather: Katima Mulilo: 20° | 36° Rundu: 22° | 37° Eenhana: 18° | 38° Oshakati: 18° | 37° Ruacana: 18° | 36° Tsumeb: 22° | 35° Otjiwarongo: 15° | 33° Omaruru: 15° | 35° Windhoek: 15° | 31° Gobabis: 12° | 32° Henties Bay: 11° | 21° Wind speed: 18km/h, Wind direction: NW, Low tide: 07:11, High tide: 13:35, Low Tide: 19:41, High tide: 01:54 Swakopmund: 13° | 15° Wind speed: 21km/h, Wind direction: N, Low tide: 07:09, High tide: 13:33, Low Tide: 19:39, High tide: 01:52 Walvis Bay: 11° | 20° Wind speed: 21km/h, Wind direction: N, Low tide: 07:09, High tide: 13:32, Low Tide: 19:39, High tide: 01:51 Rehoboth: 11° | 32° Mariental: 12° | 34° Keetmanshoop: 11° | 31° Aranos: 11° | 33° Lüderitz: 13° | 21° Ariamsvlei: 10° | 30° Oranjemund: 14° | 30° Luanda: 22° | 24° Gaborone: 12° | 25° Lubumbashi: 19° | 35° Mbabane: 8° | 12° Maseru: 4° | 17° Antananarivo: 11° | 32° Lilongwe: 19° | 30° Maputo: 14° | 22° Windhoek: 15° | 31° Cape Town: 11° | 24° Durban: 13° | 18° Johannesburg: 6° | 19° Dar es Salaam: 23° | 30° Lusaka: 19° | 29° Harare: 13° | 28° Economic Indicators: Currency: GBP to NAD 23.26 | EUR to NAD 19.53 | CNY to NAD 2.48 | USD to NAD 17.5 | DZD to NAD 0.13 | AOA to NAD 0.02 | BWP to NAD 1.28 | EGP to NAD 0.35 | KES to NAD 0.14 | NGN to NAD 0.01 | ZMW to NAD 0.65 | ZWL to NAD 0.04 | BRL to NAD 3.16 | RUB to NAD 0.19 | INR to NAD 0.21 | USD to DZD 131.91 | USD to AOA 927.77 | USD to BWP 13.17 | USD to EGP 48.46 | USD to KES 128.48 | USD to NGN 1593.37 | USD to ZAR 17.41 | USD to ZMW 26.45 | USD to ZWL 321 | Stock Exchange: JSE All Share Index Same 0 | Namibian Stock Exchange (NSX) Overall Index 1831.97 Down -0.38% | Casablanca Stock Exchange (CSE) MASI 14246.86 Up +0.44% | Egyptian Exchange (EGX) 30 Index 30937.69 Up +1.96% | Botswana Stock Exchange (BSE) DCI 9651.25 Same 0 | NSX: MTC 7.75 SAME | Anirep 8.99 SAME | Capricorn Investment group 17.34 SAME | FirstRand Namibia Ltd 49 DOWN 0.50% | Letshego Holdings (Namibia) Ltd 4.1 UP 2.50% | Namibia Asset Management Ltd 0.7 SAME | Namibia Breweries Ltd 31.49 UP 0.03% | Nictus Holdings - Nam 2.22 SAME | Oryx Properties Ltd 12.1 UP 1.70% | Paratus Namibia Holdings 11.99 SAME | SBN Holdings 8.45 SAME | Trustco Group Holdings Ltd 0.48 SAME | B2Gold Corporation 47.34 DOWN 1.50% | Local Index closed 677.62 UP 0.12% | Overall Index closed 1534.6 DOWN 0.05% | Osino Resources Corp 19.47 DOWN 2.41% | Commodities: Gold US$ 2 622.23/OZ UP +1.35% | Copper US$ 4.31/lb DOWN -0.0032 | Zinc US$ 2 884.80/T DOWN -0.23% | Brent Crude Oil US$ 74.74/BBP DOWN -0.0019 | Platinum US$ 976.09/OZ DOWN -0.0067